65 Roses?....A beautiful way of saying Cystic Fibrosis, however does not make CF any more beautiful. My wish is to be standing untarnished, unbreakable, breathing easily.... A blog that is about my day to day life, as well as trying to cope with my illness Cystic Fibrosis. There will be no hold backs just me...out in the open, hope you enjoy! xXx

My Medication

Creon (Enzyme replacement) - 8-12 with meals, 5-7 with a snack, 4 with a glass of milk, 14 with overnight feeds (average 35 tablets per day)
Insulin-Novorapid - 3-8 units with meals, Levemir 12 units with overnight feeds
Tobi nebuliser (an antibiotic to prevent flare ups of a bug in my lungs called Pseudomonas aeruginosa) Inhaled 2x daily. I alternate this nebuliser monthly with another one called Colomycin which is also an antibiotic
Pulmozyne - a nebuliser which helps break down mucus in my lungs making it easier to clear
Tiotropium, Ventolin and Seretide - inhalers to help my airwyas relax and open to allow better air flow
Flixonase nasal spray - to help inflammation that infection in my sinus causes
Azithramycin - an antibiotic to help flare ups of another bug i grow  Staphylococcus aureus
Ursodeoxychloric Acid - aims to reduce the size of gall stones and helps prevent liver damage caused by fat
Pantoprazole - this is a proton pump inhibitor drug that inhibits gastric acid secretion.
Ranitidine - inhibits stomach acid production. Much like pantoprazole
Ceterizine - is an anti histamine which helps my sinus problems
Ferrous Fummerate - is an iron supplement as i lack the recommended leveks in my blood
I also lack the recommended levels of vitamins A,D,E and K so take supplements of these also as they are fat soluble vitamins meaning i can not absorb them from my food because of my digestive system. 
Ad-cal D3, - CF people quite often have Brittle, Broken Bones/Osteoporosis/Arthritis 
Singular - This reduces the bronco-constriction resulting in less inflammation of the lungs/airways 
Citalapram - is an anti-depressant
Dianette - is a pill for birth control
Fresubin overnight feeds via an NG tube that i place each night, This goes up my nose to the back of my throat, where i then swallow the tube down to my stomach. I tape the left over tube to my cheek to administer 1200 calories to my body just to keep my weight stable. I currently weigh 7 stone 8lbs which is a vast improvement from 6 months ago as i weighed just 6 stone
And finally - Movicol and Acetylcytine help me go to the toilet

The majority of these drugs are taken twice a day, so at the moment  i am taking 60-65 tablets 3 nebulisers and 3 inhalers, nasal sprays, feeds, laxative treatments and anti depressants just to keep myself well. 
I use physiotherapy apparatus to clear my chest twice a day the devices i use arecalled Acapella,Flutter Pep and AD Breathing technices. Each device takes 30-45 minutes twice a day. There are other things available on the nhs but these are the things i find most affective for my. 

To complete all treatments in one session i need an hour and a half, so need to schedule these times in to my daily routine. This routine is the basic daily slog, if Intravenous antibiotics (IVAB'S) are included it adds another 3 hours a day. I will go more in to detail about the IVAB'S i receive in another post.

It is a long boring time consuming daily routine but absolutely essential for my health