CF Week

First off blogger has a new layout so if this doesn't come out right i apolagise.....

So as the title suggests i am about to talk about 'CF week'
It is a week, every year that the CF trust and patients try to spread awareness of CF
Admittedly this week, this year i have done very little to spread awareness due to my own health problems so instead i thought i would write a short blog (and hopefully add some links if i can work this new layout) for you to have a read of yourselves.

First of all i would like to paste a status here that a fellow 'cf-er' wrote, i have nothing to add to her words, it speaks for itself...

So, today is the last day of the UK CF Week, and everyone has been posting quite a bit about it. I'm going to make this my last post for the week, people may ignore this, people may read it. It's a stark and shocking way of putting it, but that's life. Also if it isn't a trendy or media friendly disease like cancer people generally don't give a shit. Truth.

Cystic Fibrosis: I could give you the ......medical ...definition of what it is, but that surely doesn't do justice to the realities of it all. Cystic Fibrosis is a disease that slowly destroys your body one day at a time. It causes constant pain and fatigue. Hours worth of treatments and over 30 pills... not every week, but every single day. Your lungs ache and struggle to do, what seems to others, the "simple" process of breathing.
Toxic antibiotics that improve, but yet also destroy your body. Doctors, nurses, and respiratory therapists are considered family.
We reach 18 years old. We're not celebrating because we are now considered a legal adult, we are celebrating because we are alive. Our bodies are starved from proper nutrients and oxygen. Kidneys fail. Livers fail. Hearts fail. Lungs fail. Bodies fail. People die.
Kids who never got the chance to see high school, teenagers who were holding on to hopefully make it until graduation, and adults who waited endless hours, but never received that call.
Think this is too harsh? Welcome to the life of thousands of people, who despite all of this, keep an immense amount of laughter and positivity in their lives. Welcome to life of thousands of people who deserve a cure!

Secondly i would like to show you a video the CF trust has made. Kerry Thorpe is in the video, 'a friend' i have never met, only spoke online to for about a year, somebody who truly does have the signature strength that many CF patients have, and wonderful person who i hope and prey gets listed for her double lung transplant soon.....
http://www.youtube.com/watch?v=milvvnDBYfo&feature=share

Next i want to leave a link to purchase CF wristbands, by ordering a band for £2 you will be helping The CF Trust in vital research as all proceeds go straight to The Trust, If you could spare £2  please please order one :)
http://cf-breathe-easy.webs.com/

I will leave this blog here for now....
I just wanted to say, that once again, my reasoning behind this blog is to raise awareness of all aspects of CF, its problems, the facts, the truths, the laughs or embarrassment it can often bring....so please do share my blog to your own profiles for people to read and share.

Thankyou to all that do already read my blog, and i hope you will continue to do so...
And together lets make CF stand for 'Cure Found'
:)
xxx